Monday, April 29, 2019

May is Mental Health Awareness month

 Note: this is a re-write to focus my thoughts better.  Please enjoy and comment if you can.  There will be a part two. 

Depression and anxiety. 

Topics we don't typically talk about,  even to our best friends. There is guilt and shame tied to every diagnosis by popular media. 
So,  why do I want to talk about it?

I don't - want to talk about it. 

Even bringing it up causes the weight on my chest to intensify and my breathing to pick up, but I believe it is an under-represented emotion in our lives that needs further representation - immediately.

As a long term type one diabetic patient, as with many other chronic,  day to day diseases,  I live with the normal stresses healthy people have,  plus a minute by minute awareness of everything that affects my blood sugar and how to manage it.  Even with all the technology available for us to help us"manage" diabetes,  its not a cure,  and its still a constant thought.
So with all that going on,  depression and anxiety seem inevitable,  don't they? So why did I call it under-represented?

Very true - staggeringly true even - it is not low in existence - it is low in discussion - especially from those who are clinically depressed and even more to the point,  among the chronically afflicted auto immune patients. 

 There are all sorts of statistics that will prove that it's out there, but talking about it pulls such a feeling of failure from the "patient" - heretofore known as "me" that even mentioning it makes me feel like I did something wrong in my life to be here.

Full disclosure - I am currently on leave from work for mental health reasons. No I didn't "do anything stupid" - an offensive term I'll explain later. I merely, after 4-5 years of increasing stress - found myself at a point where concentration to do even the littlest things, like driving and eating, was non-existent. Where mini-panic attacks, with increased respiration, chest tightness almost feeling like a heart attack, and feeling the need to flee or hit something to distract myself, was not only a daily thing, it was an hourly occurrence. I realized I needed help somewhere leading up to that and talked to my professionals and some friends who have been where I am and got help.

Along the way I encountered surprise - that I couldn't handle the stress as well as others in my area - as if work was my only stressor (not that diabetes, dealing with my fathers cancer, slow death and being his executor had anything to do with it). I encountered disbelief, that an "extended vacation" could do anything to help - from even those closest to me.

Ultimately, many, many crying fits later - mostly in my car by the side of the road, I decided a leave of absence to get my life in order was necessary.

Let me get back to Depression - what is it?
Merriam-Webster defines Clinical depression as:
     Medical Definition of clinical depression
       : depression of sufficient severity to be brought to the attention of a physician and to           require treatment
       specifically MAJOR DEPRESSIVE DISORDER
You can go to the link on major depressive disorder if you want to see where my head was for a long time. Add to that "generalized anxiety disorder" and you'll see why I felt it necessary to take time off.Ignoring all that for a moment - I am a unique individual - as we all are, but in this case - I've been through several points in my life where I felt the need to make a CHANGE.Yes - it's capitalized and bolded for a reason.It's important to note a couple of things here.1. At the time I took leave, I knew, or was no more than one person removed from, three wonderful people who took their lives.2. I know at least three people who worked their way into heart attacks or strokes in the past three years.3. I know all about the Phoenix Psychiatric situation and it terrifies me.Given the above, I have sworn (silently) that I will not inflict suicide on my loved ones - no matter how attractive a way to end my problems it might appear. This was an old vow from college I have renewed recently. I have also sworn that if my health is being impacted I need to do something about it.As a result - I am working on me. I'm going to cut this short now and talk more later, but the following points are important for those who care to follow this:a) I am getting helpb) It is really difficult and I am by no means enjoying this time off c) The guilt is overwhelming - have been talking to my psych about thatd) even med changes and more drastic measures (TMS - look it up) have not made significant changes - but some minor ones so far.e) larger changes are in storef) My husband loves me and is here for me. no matter if he understands or not, and that means the world to me..
My friends - I love you and miss you.More later,S.

Friday, November 25, 2016

When hugs aren't enough

"Hugs" - the most common response to sharing sad or distressing news. I've very recently stopped posting this response as I've learned from experience that while some sincerity is implied, it's often not what is needed.
When a person tells you of a grief or struggle, while a physical hug may provide some instant sorry, a virtual hug, repeated with every passing trouble, feels insincere.
I now feel that when someone tells you they are sick, or a friend or relative is dying, a better response may be, how can I help, what can I do to ease your friend or family member's way.
I, as the aggrieved, don't need a word, I need support, and the person suffering needs the words, the love, the help. Ask me how you can help them, not me.
I will recover, while they may not.

Friday, May 20, 2016

Tips and tricks

#DBlogDay number five: Tips and tricks
Writing this on my phone today, as sitting at my desk is too painful. Herein is my first tip:
1) Don't forget that not all of your health issues have to do with diabetes! Take care of yourself normally as well as "diabetically". I rolled over something on my side a few days ago. Thought I pulled a muscle so let it lie. Woke today in excruciating pain. Docs tell me it's a bruised or cracked rib. The lesson is: if it doesn't feel right get it checked out!
2) You are not alone!!! There are many others of us out here who share some of the same challenges you have faced. Don't be afraid to ask us for help! If we don't know, we probably know someone who does. We're not doctors and can't give medical advice, but we can give life advice and be a listening, compassionate, ear.
3) Nobody's perfect - everybody makes mistakes! Making a mistake isn't a reason to beat yourself up or to give up. Pick yourself up and keep moving on. It will resolve itself one way or another.
That's all I have for today I hope this helps somebody. Have a wonderful weekend!!!

Thursday, May 19, 2016

Pulling the Wild Card!

Welcome to #DBlogWeek Day 4.

Today I'll be doing a running Blog, to cover the Wild Card Topic I've chosen for today:

Some people track every bite they eat, some might not remember at lunch time what they had for breakfast or if they even had breakfast. For one day, document everything you or your loved one with diabetes eats and drinks. The good, the bad, the ugly, the proud, the ashamed, the...whatever. We promise not to judge!!

I'll be keeping track, as the day goes on, as to what I eat, not just for meals, but for lows (and snacks!).

Breakfast today at 6:40am:

Eggo Blueberry Waffles with Butter (because nothing says today is going to be a great day like starting it with Real Butter. Mmmmmm).
Beverage - Mix from work I do - Diet Mountain Dew and a reddish fruit water that I just spent 15 min searching for - but it's yummy!
29 Carbs extended over an hour to cover the butter impact.

Mid morning snack (ok I hit 34 and had to EAT!!!)

Six GlucoLift Cherry Glucose tabs (18 carbs) which probably would have done it but 34 causes a bit of panic...  so followed that up with about 12 Ritz crackers (24 carbs) - followed by a unit of insulin a bit later to cover that spike.

Lunch at noon   ------------------------------>>>
Salad with chopped egg (15ish carbs)
Chocolate chip cookie (26 carbs)
Sobe lean cranberry grapefruit


Snack at 2:30p - remainder of my Ritz as sugars slowly sink to 82. This kept my sugar up around 90 at the 5pm end of day.

Dinner
About 1c white rice - 45g carbs - treat with 3U Humalog
3 oz seasoned salmon
7 brussel sprouts

AND - dessert - ok not quite but it's yummy!
1oz Grey Goose Vodka with 1oz  Buttershots Dekuypers Schnapps...
OK maybe 1.5 oz of each - hey it's a stressful week - ask me about it!

Hopefully I won't have to add a snack for miscalculation with alcohol later but we'll see, won't we? :-)

Wednesday, May 18, 2016

Watch Your Language!

How many times have you heard that from your parents? :-)

#DBlogWeek Day 3 Prompt:
Many advocate for the importance of using non-stigmatizing, inclusive and non-judgmental language when speaking about or to people with diabetes. For some, they don't care, others care passionately. Where do you stand when it comes to “person with diabetes” versus “diabetic”, or “checking” blood sugar versus “testing”, or any of the tons of other examples? Let's explore the power of words, but please remember to keep things respectful.

I have a slightly different take on the "PWD vs Diabetic" conversation. I was diagnosed back in 1971-ish range. The term "Diabetic" was generally used at that time - no one thought anything of it. Now we're in the 21st century and people are, as Heather Gabel pointed out, using "Person-first" language. Example - People with Diabetes, rather than Diabetic. I know a number of people who are varying levels of vehemently against terms like Diabetic in that it identifies a person as a disease or implies a close relation. I do my best when around multiple people who share my condition to fall on the most polite of courses, namely "PWD" or Person with Diabetes.

Now, for myself, I've really never thought of Diabetes as a disease. I mean, according to all the dictionaries I bothered to look at just now, it is indeed a disease, but I've always thought of it as a condition. I think of disease as something you catch, whether from people, insect, plant or food, is treatable and it ends eventually, via health or death. Well, we all do die eventually, right?

I like to think of it as - something happened and now my pancreas doesn't work right. I can take it out and replace it (I KNOW it's not that easy!) or I can react to the lack of insulin production. A chair with three legs has a condition known as "unbalanced" (much like me, but that's another tale). I have a condition known as "broken pancreas" and therefore I am a Diabetic - which really means "with close relation to Diabetes" or some such. The -ic ending defines us all... I own this term and am proud of my progress in controlling my condition and in sharing my thoughts, as evidenced in this blog.

On the -ic thought...

I am not only Diabetic...

     I am Dramatic (ask my husband)...

          I am Emphatic...

               I am somewhat neurotic...

                    And - I am Ecstatic that you came to read my blog!!

Love and Hugs!